{ "@context": "http://iiif.io/api/presentation/3/context.json", "id": "https://budc.barry.edu/iiif/manifest/AA00001790/00001", "type": "Manifest", "label": { "none": [ "The lived experience of adults with sickle cell disease during vaso-occlusive crises" ] }, "metadata": [ { "label": { "en": [ "Abstract" ] }, "value": { "none": [ "Background: Many sickle cell disease (SCD) patients continue to go through multiple vaso-occlusive crises (VOC) each year. The pain experienced during VOC is either undertreated or inappropriately managed because of the low attention paid by healthcare providers to SCD patients during their sickle crises. Exploring the lived experiences of adults with SCD during VOC will help the frontline healthcare providers to provide better care and develop more culturally sensitive practices that will minimize the physical and psychological suffering associated with VOC. Purpose: This study explored the lived experience of adults with sickle cell disease, living in South Florida, during vaso-occlusive crises. Philosophical Underpinning: A heuristic qualitative approach was guided by the interpretivist paradigm to gain an understanding of the lived experience of adults with sickle cell disease. Methods: The sample was adults with SCD who have experienced vaso-occlusive crises in South Florida. Purposive and snowball sampling was be used. Data analysis was guided by Moustakas\u2019 (1994) transcendental phenomenology. Results: From 20 sickle cell individuals who have experienced at least a VOC, four themes emerged Excruciating Pain, Depressing, Feeling Helpless, and Dreading Healthcare Workers\u2019 Attitude. Conclusions: This study revealed that during vaso-occlusive crises, sickle cell individuals go through physical and psychological sufferings. The participants revealed that healthcare workers fail to acknowledge their sufferings during VOC, and they fail to treat them effectively." ] } }, { "label": { "en": [ "Classification" ] }, "value": { "none": [ "RC641.7.S5 A34 2019" ] } }, { "label": { "en": [ "Publication Date" ] }, "value": { "none": [ "2019" ] } }, { "label": { "en": [ "Genre" ] }, "value": { "none": [ "Academic theses" ] } }, { "label": { "en": [ "Holding Location" ] }, "value": { "none": [ "Barry University Archives and Special Collections" ] } }, { "label": { "en": [ "Resource Identifier" ] }, "value": { "none": [ "RC641.7.S5 A34 2019_AdeagboOlufolake" ] } }, { "label": { "en": [ "Language" ] }, "value": { "none": [ "English" ] } }, { "label": { "en": [ "Permanent Link" ] }, "value": { "none": [ "http://sobekcmsrv.barrynet.barry.edu/AA00001790/00001" ] } }, { "label": { "en": [ "Creator" ] }, "value": { "none": [ "Adeagbo, Olufolake" ] } }, { "label": { "en": [ "Note" ] }, "value": { "none": [ "Thesis (Ph.D.)--Barry University, 2019.", "Includes bibliographical references (leaves 191-205)." ] } }, { "label": { "en": [ "Physical Description" ] }, "value": { "none": [ "xv, 214 leaves : illustrations" ] } }, { "label": { "en": [ "Publisher" ] }, "value": { "none": [ "Barry University" ] } }, { "label": { "en": [ "Place of Publication" ] }, "value": { "none": [ "Miami, Fla." ] } }, { "label": { "en": [ "Type" ] }, "value": { "none": [ "Book" ] } }, { "label": { "en": [ "Rights Management" ] }, "value": { "none": [ "Copyright Olufolake Adeagbo. Permission granted to Barry University to digitize, archive and distribute this item for non-profit research and educational purposes. Any reuse of this item in excess of fair use or other copyright exemptions requires permission of the copyright holder." ] } }, { "label": { "en": [ "Source Institution" ] }, "value": { "none": [ "Barry University" ] } }, { "label": { "en": [ "Subjects / Keywords" ] }, "value": { "none": [ "Sickle cell anemia -- Patients -- United States", "Anemia, Sickle cell", "Genetic disorders", "Pain -- Treatment" ] } }, { "label": { "en": [ "Degree Disciplines" ] }, "value": { "none": [ "Nursing" ] } }, { "label": { "en": [ "Title" ] }, "value": { "none": [ "The lived experience of adults with sickle cell disease during vaso-occlusive crises" ] } }, { "label": { "en": [ "Series Title" ] }, "value": { "none": [ "Barry University Dissertations -- College of Nursing and Health Sciences" ] } }, { "label": { "en": [ "Format" ] }, "value": { "none": [ "Book" ] } }, { "label": { "en": [ "Digital Resource Creation Date" ] }, "value": { "none": [ "5/8/2020" ] } } ], "service": [ { "@context": "http://iiif.io/api/search/2/context.json", "id": "https://budc.barry.edu/iiif/manifest/AA00001790/00001/search", "type": "SearchService2", "profile": "http://iiif.io/api/search/2/search" } ], "seeAlso": [ { "id": "https://budc.barry.edu/content/AA/00/00/17/90/00001/AA00001790_00001.mets.xml", "type": "Dataset", "format": "application/mets\u002Bxml", "label": { "en": "METS" } }, { "id": "https://budc.barry.edu/content/AA/00/00/17/90/00001/marc.xml", "type": "Dataset", "format": "application/marcxml\u002Bxml", "label": { "en": "MARCXML" } } ], "items": [] }